Following this year’s World Rare Diseases Day and with the online presence of 57 distinguished Greek and foreign speakers and more than 450 participants from 30 countries around the world, the two-day International Conference on Rare Diseases: Greek Chapter, organized for the 2nd year by the Association “95”, Hellenic Alliance for Rare Patients, BOUSSIAS and Health Daily, ended on Wednesday, March 2 with great success. Taking into account the recent United Nations Resolution, the main theme of this year’s Conference was “Balance between Equality and Sustainability”. The conference was held under the auspices of the European Parliament and EURORDIS – Rare Diseases Europe.
The government was represented by the Minister of Health Mr. Thanos Plevris, the Minister of Labor Mr. Kostis Hatzidakis, Ms. Mina Gaga, Deputy Minister of Health and Ms. Pavlina Karasiotou, Secretary General of Social Security, Ministry of Health and Ministry of Social Affairs. The European Parliament was represented by Mr. Dimitris Papadimoulis, Vice President of the European Parliament, Mr. Stelios Kympouropoulos, MEP-psychiatrist, Norbert Couspel, Chair, Future-Proofing Health Systems Committee, European Health Parliament, 7th edition, Tomislav Sokol, MEP, EPP Group in the European Parliament and Maria da Graça Carvalho, MEP. The main topic of discussion was the need to promote and protect the human rights of patients with Rare Diseases as well as the effective treatment of their problems – from diagnosis, care, research and innovation, to access to innovative drugs- which require education, coordination, participation and cooperation of all parties involved.
Gold Sponsor of the Conference was Takeda. Grand sponsors were Novartis Gene Therapies and Roche. Sponsors were Alexion, Chiesi, Genesis Pharma, IQVIA, Pfizer and PTC Therapeutics. Supporter was Ardius Pharma.