https://www.rarediseases-conference.com/wp-content/uploads/2023/01/Organized-by.png

https://www.rarediseases-conference.com/wp-content/uploads/2022/12/Untitled-1.fw_.png

February 28 (Hybrid) & March 1 (Digital), 2023 | Technopolis City of Athens Gasholder 1 – Auditorium “Miltiadis Evert

Leveraging the momentum for a comprehensive rare disease strategy


The 3rd International Conference on Rare Diseases organized by Rare Diseases Greece (RDG), “95” Rare Alliance Greece and Boussias, following the World Rare Disease Day 2023, will take place on February 28 & March 1, 2023.

Following the success of the previous two years and having advanced the policy agenda on both national and international level, the Organizing Committee – consisting of the Rare Diseases Greece (RDG), the umbrella organization with its 28 members that represent the rare disease community in the country, and the “95” Rare Alliance Greece – brings together all the key initiatives and stakeholders currently shaping the rare disease landscape with the aim to highlight the urgent call to action in adopting a European RD Action Plan and its implementation across Member States.

The current policy momentum, the regulatory and digital health evolution in the European Health Ecosystem provide a big opportunity for co-creation and concrete solutions to rare disease patients’ unmet needs in the foreseen future.


LEARN MOREREGISTER

About the Conference


Under the theme “Leveraging the momentum for a comprehensive rare disease strategy”, the 3rd International Conference on Rare Diseases aspires to stimulate dialogue and cooperation across all stakeholders – patient representatives, policymakers, clinicians, researchers, industry, payers and regulators – towards advancing a comprehensive rare disease strategy that promotes sustainability and equity within healthcare ecosystems.

Taking concrete actions and co-creating policy solutions that respond to the unmet needs of people living with rare diseases will lead to a better future for patients, their families and societies at large.

Utilizing the experience and knowledge of international partners, the conference will open the dialogue with the current political developments in Europe and the drawing up of a National Strategy for Rare Diseases with the ultimate goal of creating and implementing the National Action Plan for Rare Diseases within 2023.


CHECK THE AGENDA

Main Streams will focus on


  1. Policy Landscape on Rare Diseases
  2. Regulatory Ecosystem Evolution
  3. Initiatives Updates (SRIA EJPRD, S4C, ERICA, TOGETHER4RARE, TRANSFORM, MOONSHOT, and others)
  4. Prevention and Early Diagnosis: The Development of prenatal and neonatal screening programs
  5. Development and Integration of the European reference centers (ERNs) in the National Health System
  6. Research, Clinical Trials as part of the care
  7. Patient Data & RWE: Collection of valid and reliable information and the Rare Disease registry
  8. Strategic Planning for Rare Diseases in Greece
  9. RD Patients Registry and the Greek National Action Plan for Rare Diseases
  10. Supporting Education for Patients and Healthcare Professionals

Speakers


-TBA-

Who should Attend?


Healthcare Stakeholders • Government representatives & officials • Pharmaceutical industry executives (Market Access, Government Affairs, Health Economics) • Public & Private Health services providers • Health economists • Health Policy Experts • Healthcare Professionals • Nurses • Academics • Researchers • Journalists • Patient and Patient Representatives


REGISTER

Testimonials

Organized by

https://www.rarediseases-conference.com/wp-content/uploads/2023/01/ΕΣΑΕ.png
https://www.rarediseases-conference.com/wp-content/uploads/2023/01/RARE-ALLIANCE_logo-colour-white-background.png
https://www.rarediseases-conference.com/wp-content/uploads/2021/12/boussias_black-01.png

Under the Patronage of

https://www.rarediseases-conference.com/wp-content/uploads/2022/01/eurordis.jpg

Under the Support of

https://www.rarediseases-conference.com/wp-content/uploads/2023/01/5c9978_ministryofhealthlogo.png
https://www.rarediseases-conference.com/wp-content/uploads/2022/02/gpa.png
https://www.rarediseases-conference.com/wp-content/uploads/2022/02/efpia-e1644403148724.jpg
https://www.rarediseases-conference.com/wp-content/uploads/2022/01/Eucope.png
https://www.rarediseases-conference.com/wp-content/uploads/2022/02/ifet.jpg
https://www.rarediseases-conference.com/wp-content/uploads/2023/01/PIF-black.png
https://www.rarediseases-conference.com/wp-content/uploads/2022/02/sfee_en.jpg

Media Partner

https://www.rarediseases-conference.com/wp-content/uploads/2018/12/phocus.png

Media Sponsors

https://www.rarediseases-conference.com/wp-content/uploads/2023/01/f_daily_logo.jpg
https://www.rarediseases-conference.com/wp-content/uploads/2022/02/healthmarketing.png
https://www.rarediseases-conference.com/wp-content/uploads/2022/02/healthmore.png
https://www.rarediseases-conference.com/wp-content/uploads/2022/02/iatronet.jpg
https://www.rarediseases-conference.com/wp-content/uploads/2023/01/News4Health.jpg
https://www.rarediseases-conference.com/wp-content/uploads/2021/02/onmed.jpg

Audiovisual Sponsor

https://www.rarediseases-conference.com/wp-content/uploads/2020/12/coneq.png

CONEQ provides technical equipment and services to any kind of event. With our Simultaneous Interpretation Systems, Conference Systems, AudioVisual Equipment we support events and provide the best service to our customers. Our professionalism, our high quality of service and state of the art equipment offered to over 600 large and of great significance conferences during the last 5 years have certainly contributed to our constant uptrend. Call us at (+30) 211 2163453. or email us at [email protected]


Contact us


Registrations & Sponsorships
Chrysoula Kordouli, Τ: +30 210 6617777 (ext. 204), +30 6946236795, E: [email protected]
 
Info & Content
Natalia Toubanaki, T: +30 210 6617 777 (ext. 289), +30 6947936708, E: [email protected]
Valya Kyritsi, T: +30 210 6617 777 (ext. 227), E: [email protected] 

BOUSSIAS

  338. Kleisthenous Str. 15344, Gerakas, Attiki, Greece
  +30 210 6617777
  +30 210 6617778
  www.boussias.com