EMPOWER 2024 – RARE DISEASES PATIENT RIGHTS AND ACCESS GUIDE TO OD

Georgia Moraiti, Patient Rights Guide Project Lead, Social Services Expert, Patient Network Officer, Rare Diseases Greece
Vasiliki Palamouti, OD Access Guide Project Lead, Molecular Biologist & Geneticist, Registers Manager, Rare Diseases Greece
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RARE DISEASES MAP

Elina Miaouli, Rare Diseases Greece Map, Project Coordinator, Communication Officer, Rare Diseases Greece
Sergiu Siminiuc, Rare Diseases Greece Map, Technical Project Officer, Duchenne Data Foundation
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RARE DISEASES IN THE AI ERA

Emmanouil Remoundos, Engagement Manager, Technology. Greece, IQVIA
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UNMET NEEDS & RARE DISEASES BUDGET IMPACT

Georgia Moraiti, Social Worker, Patient Network Officer, Rare Diseases Greece
Maria Kalogeropoulou, Associate Director Value Access, Health Policy & RWE, IQVIA
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ERDERA AND THE ROLE OF THE NATIONAL MIRROR GROUPS

Daria Julkowska, Scientific coordinator of the European Rare Diseases Research Alliance (ERDERA)/Assistant Director of the Thematic Institute for Genetics, Genomics & Bioinformatics (IT GGB) at INSERM (online)
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SUSTAINABILITY IN ACTION: HTA AS AN INSTRUMENT FOR EQUITY IN HEALTHCARE DECISION-MAKING

Anja Schiel, Senior Advisor, Methodologist in Regulatory and Pharmacoeconomic Statistics Norwegian Medicinal Products Agency (NOMA
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