Kate THEOCHARIS

Kate Theocharis also represents ‘’ Solidarity  Association’’ in Eurordis, International Gaucher Alliance (IGA),Pompe International and MPS Diseases International.

Member of the Gaucher Disease Task Force of the European Hematology Association &  EWGDD (European Working Group for Gaucher Disease).Has received training  in the Greek Patient Academy and taken part in many workshops and national and international  scientific conferences  concerning : Clinical trials, Health Technology Assessment  and Patient Association  Development. Project leader in  Patient  Social Support and Patient Empowerment  of Lysosomal Patients .Participated in the IGA Strategic  plan 2024-2029 and  Older Generation Project .Took part in Parliament  debate concerning Centers of Expertise and  in National Health Ministry meetings concerning Patient Rights .Very active in Mass Media and  a writer of many articles during the past years.

Collaborated with Health Authorities especially Hospital Authorities  and the National Organization of Health Services (EOPYY)  to solve drug access and monitoring of Lysosomal Diseases in hospital environment .

During the Covid  Pandemic she strongly collaborated with Red Cross , Local Authorities and Pharma industry  to cover  patients’ needs .

She strongly believes in  the cooperation of all shareholders related to the Unmet Needs of Rare Disease  Patients .

Recently she was elected in the Board of Rare Diseases Greece as Vice president A and member of board of the  Greek Patient Union .