Kate THEOCHARI

Kate Theochari is a long-standing patient advocate in the rare disease community, active since 1997. Following a 12-year journey to diagnosis with Gaucher disease, she became a leading voice advocating for improved access to treatment and reimbursement for lysosomal diseases in Greece and internationally.
She is the founder of the Greek Lysosomal Diseases Association “Solidarity”, where she has built a strong and empowered patient community. Since 1999, she has been actively involved with the International Gaucher Alliance and represents her association in EURORDIS, Pompe International, and MPS International.
She serves as Vice President B of Rare Diseases Greece and is a board member of the Greek Patient Umbrella Organization.
Her work focuses on evidence-based advocacy, social care, psychological empowerment, and strengthening primary and community healthcare. She is committed to bridging the gap between health and social care and ensuring equitable access for people living with rare diseases