International Conference on Rare Diseases 2024


Navigating the Uncharted: Advancements, Collaborations, and Hope in Rare Diseases

Πρόσβαση σε νέες θεραπείες για την αντιμετώπιση των σπάνιων παθήσεων

Aris Angelis, Secretary General of Strategic Planning, Hellenic Ministry of Health
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The impact of the European Health Data Space

Charalampos Vassiliou, Digital Transformation, Strategy and Innovation Advisor at the Strategic Planning & Coordination Unit, Head of European Programmes Sector, Directorate for Digital Transformation and Digital Skills at the National Infrastructures for Research and Technology Network (GRNET S.A.)
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Yanis Mimouni, Senior Project Manager, EJP RD, INSERM, France
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Alessandra Ferlini, Professor in Medical Genetics and Director of the Medical Genetics Unit, University of Ferrara (Italy), Honorary Visiting Professor, University College of London, leader of the Italian Euro-NMD ERN Genetic task and member of Euro-NMD, ITHACA, and EuroBloodNet ERNs at the University Hospital of Ferrara, Screen4Care EU-IHI project scientific Coordinator
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Scaling-up Real-World Evidence generation in Europe – DARWIN EU

Patrice Verpillat, Head of Real-World Evidence (TDA-RWE), Data Analytics and Methods Task Force (TDA), European Medicines Agency (EMA)
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