President European Haemophilia Consortium, PRAC Member
Declan Noone has been the President of the European Haemophilia Consortium (EHC) since 2019. He has extensive experience as a patient advocate at the national and global level, coordinating projects on data collection and novel therapies in hemophilia. He was a Data and Public Policy Specialist for 8 years for the Irish Haemophilia Society (IHS) and served on the national tender board to help purchase new therapies for hemophilia treatment.
Declan was a member of the Board of Directors of the World Federation of Hemophilia (WFH) and the WFH Education Materials, Data, Demographics, Safety, and Supply Committees. His research interests focus on quality of life in people with hemophilia and access to hemophilia care in Europe.